deidentify.org

deidentify.org is a cloud platform for data custodians to share data with researchers in a way that meets Victorian privacy legislation and Australian human research ethics guidelines for non-identifiable data. Unlike existing methods in which the data custodian substitutes names with anonymous identifiers then hands over the full ‘de-identified’ dataset to researchers — which may still lead to re-identification or permit unethical uses if the dataset contains quasi-identifiers such as times, dates, or locations — deidentify.org encourages researchers to write analysis programs that extract just the data they need, and gives the data custodian control over which analyses can run.

How it works

Questions?

Contact Andrew Simmons (a.simmons@deakin.edu.au) to learn more. As a security precaution, accessing the project specific data sharing portal requires a custom link that only the data custodian and researcher have access to.